Defining palliative care in cystic fibrosis: A Delphi study
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چکیده
منابع مشابه
Research priorities in pediatric palliative care: a Delphi study.
BACKGROUND Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. OBJECTIVES The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinent ...
متن کاملWhite paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care.
BACKGROUND Dementia is a life-limiting disease without curative treatments. Patients and families may need palliative care specific to dementia. AIM To define optimal palliative care in dementia. METHODS Five-round Delphi study. Based on literature, a core group of 12 experts from 6 countries drafted a set of core domains with salient recommendations for each domain. We invited 89 experts f...
متن کاملDeveloping palliative care practice guidelines and standards for nursing home-based palliative care teams: a Delphi study.
CONTEXT Lack of nursing home (NH)-specific palliative care practice guidelines has been identified as a barrier to improving palliative and end-of-life (EOL) quality of care. OBJECTIVES The objectives of this study were to (1) assess which of the guidelines developed by the National Consensus Project, and the corresponding preferred care practices endorsed by the National Quality Forum, are i...
متن کاملDefining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care
BACKGROUND People with intellectual disabilities often present with unique challenges that make it more difficult to meet their palliative care needs. AIM To define consensus norms for palliative care of people with intellectual disabilities in Europe. DESIGN Delphi study in four rounds: (1) a taskforce of 12 experts from seven European countries drafted the norms, based on available empiri...
متن کاملCystic Fibrosis Adult Care
2004;125;1S-39S Chest and David Rodman James R. Yankaskas, Bruce C. Marshall, Beth Sufian, Richard H. Simon * Cystic Fibrosis Adult Care html http://chestjournal.chestpubs.org/content/125/1_suppl/1S.full. and services can be found online on the World Wide Web at: The online version of this article, along with updated information ISSN:0012-3692 ) http://chestjournal.chestpubs.org/site/misc/repri...
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ژورنال
عنوان ژورنال: Journal of Cystic Fibrosis
سال: 2018
ISSN: 1569-1993
DOI: 10.1016/j.jcf.2017.10.011